Being my Grandson’s Special Guardian

23 January 2024

Family Action is committed to supporting all families, and we don’t believe there is any “normal” family situation. Retirement is often the period where people look forward to a life free from the responsibilities of work and raising a family. Special Guardians inherit the caring role from their children, starting again from the beginning. Here, Special Guardian Ruth* tells us whilst this can be difficult, she wouldn’t change a thing about the family they’ve built together.

It’s funny…once it happens to you then you realise that it’s not that uncommon now to be a Special Guardian – I know a couple of other people that have had to take on caring responsibilities for their grandchildren.

Ruth*, Grandmother and Special Guardian

In my case it was more difficult though, due to my grandson’s additional needs. He’s got Global Development Delay and Cerebral Palsy, and as a baby he was on a lot of medication. It was harder initially as, at that point, he wasn’t diagnosed; We just knew he had a weakness in his right side, and it was hard to diagnose until he walked.

Meeting Milestones

It took him a lot longer to achieve things than other kids and it was tough for me to see that he wasn’t meeting those milestones. I remember going to a “normal” playgroup when he was little, and they kept asking me how old he was and why he wasn’t walking yet. I thought “you know what… I’m not going to explain to you”, so I started to go to a local specialised toddler group. There were other children with additional needs, and it was lovely. It was so great, and I made friends through attending.

We love Family Action’s SENDIASS service. They host sessions where my grandson can interact with children who have the same struggles.

Finding support as a Special Guardian

My partner is a Sikh and does a lot for charity – helping to feed the homeless and raise funds for the local children’s hospital – and community is so important for us.

That’s why we love Family Action’s SENDIASS service. They host sessions where my grandson can interact with children who have the same struggles and point us toward all the great provision in the local area that’s designed for us, opens up early for young people with additional needs or lets us in before the general public.

Life’s an adventure

I’ve got eight grandchildren in total, which sounds like it could get expensive, but I find you don’t have to have a lot of money to have a good time. When we see them we like to go to the local forest and have a little adventure. Eight sounds like a lot but I love having so many!

Because of my grandson’s additional needs, it can be tiring, as other kids don’t have to have things like twice-yearly reviews, constant hospital visits and targets they need to meet. But the rewards! Watching him grow up and reach those targets has been amazing.

The benefits of being a Special Guardian

Caring for him has been such a rewarding way to spend my retirement… because I’ve retired, I’m able to reap the benefits. We never thought he’d walk or speak, and we never thought he’d go to a mainstream school, but he proved everyone wrong. He’s such a laid back little boy, he loves to please and he’s happy with anything we do and anything we give him.

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